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The children of the HighPointe Pediatric Pavilion come from around the region and face many different challenges. In some cases, there is no family present to care for them. The following life stories illustrate the importance of the Pediatric Unit and our mission to offer comfort, compassion and respect to our children.
Life Stories


Devante Boston

To see the big brown eyes of Devante Boston is to see the devastating effects of child abuse in our society. At just 4 years old, Devante was physically abused by his mother's boyfriend, resulting in severe brain damage and leaving the boy with no movement. His mother was addicted to drugs and alcohol and had no part in his life. Through the love and efforts of Devante's grandmother and other family members, he found a safe and caring home at the HighPointe Pediatric Pavilion.

Today, Devante is nearing 12 years of age and continues to call the Pediatric Pavilion home. He has limited vision and is physically immobile. However, his big brown eyes respond to the nurturing he receives from the staff of the Unit and his family. Whether being read to or listening to music, Devante can sense the loving care he is given every day.

Tommy

The special blended setting for dependent adults and children at the Pediatric Unit provided a solution for Tommy, a 30-year-old man born with special needs.

After spending all but two years of his life at Baker Victory in Buffalo, Tommy was admitted to Women and Children's Hospital with respiratory problems. A life-saving tracheotomy was performed and he spent five months in the hospital. However, he required 24-hour respiratory services and was unable to return to Baker Victory or any other adult long term care facility in the area.

The Pediatric Pavilion could accommodate Tommy, but he exceeded the chronological age for reimbursement of his medical needs. Tommy's mom, Debbie, executives from Kaleida Health, and staff from the Unit teamed up to hurdle mounds of red tape and legal regulations to have Tommy admitted.

Their hard work and commitment to caring meant Tommy had found a home at the Pediatric Pavilion. He was able to spend the final three months of his life in a warm and caring environment, with his mom by his side, and his extended family at the Unit adding quality to his life.

Nathan Gailor

Nathan Gailor was born a healthy and beautiful baby boy in 1991. At about 2-1/2 years old he had his first grand mal seizure. Soon a series of small seizures led to many, many tests and medications in an effort to bring the seizures under control. Nothing seemed to work.

As he grew, Nathan attended school in special education classes and learned to read, print and do some math. His passion, though, was drawing, and his talents were obvious. He also loved music, a love handed down by his mother, and he and his younger brother, James, would often sing together. The seizures continued, however, Nathan would recover and continue with school and other activities.

About five years ago, Nathan had a grand mal seizure like no other he had before, and he spent 3 months at Children's Hospital. He could no longer talk, walk, eat, draw or sing. He was just 13 years old. He was transferred to the HighPointe Pediatric Pavilion when his family was told his condition would not improve.

Nathan's story does not end there. Thanks to the care and compassion of the staff at the Center, his condition did improve. He can now feed himself with his left hand. He does not talk, but can communicate in his own way, and understands when he is spoken to. His dexterity has improved immensely at the Unit and he attends Heritage School.

Nathan's mother passed away two years ago, and his grandmother credits his "family" at the Unit with giving him a very blessed quality of life.

 
 
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